The little things

Look at this awesome blanket Madeleine's Gma Forbes made for her...it has a matching hat, jacket and booties! She LOVES it...

Today was all about those little things. Baby steps. These days...I appreciate smaller things. Even big changes that are good can be a drain. Here are all the little changes that happened today that even though they are small baby steps in the right direction...still feel gigantic to me. It seems that my sense of proportion has been off ever since Madeleine arrived in our lives.

First, Peanut and Mr. Nitric Oxide have called it quits! He's still waiting by the bedside in case they need to hook up and "have words"...but their relationship has been called off and they probably won't be getting back together! She's tolerating this quite well since she was on her back this afternoon (her least favorite position) and was on about 43% oxygen. When I got to the NICU, she was on 39%...her lowest ever. Next, she has no more skin temperature probe...the little wire that was held on with those fabulously shiny gold hearts? Her weight and growth was appropriate for her to not have to have that anymore. So far, she's holding her temp well.

Another change...they tried swaddling her, and she LOVED it. She's wrapped up like a Peanut burrito now. She's so relaxed, sleeping like a baby! She's also up to 27 ml of milk and loving every drop. The head ultrasound they did this morning showed no change...her ventricles were still the same size, and the clot from her previous bleed was "evolving"...breaking up slowly and being reabsorbed. They'll watch her head circumference to make sure she doesn't get excess fluid, but so far, it's grown normally. There's talk of weaning her hydrocortisone too...and even the rate on her vent...not the pressure, she doesn't like that...but just the breath rate. They also haven't had to transfuse her lately, so she lost her "unicorn" IV in her forehead!

So that's pretty much it for now! A lot of little things. The 5th/6th grade girls and I made jewelry this morning. We had a good time and only dropped two containers of beads! I'm going back tomorrow for an hour to finish up and get them to draw peanuts for Madeleine's 6 week birthday. Grow, baby grow.